Hickman line

imageI went to shaare zedek today to get my Hickman catheter placed.

My daughter finally got to meet Dr. Rowe and she seemed to know all the minute details of the procedure. I’m very happy to have her here and now I have more information on what’s going to happen and when.

Tuesday I will have my stem cell numbers checked and then go to Haifa to get my stem cells collected from the Hickman catheter. It’s a process called pharesis; they hook me up to a machine that takes my blood (similar to donating blood), they filter out the stem cells (CD34 cells) and then put the rest of the blood back into me. Depending on how many cells I get I may need a second collection on Wednesday. Then the plan is to admit me on Wednesday evening and I start chemotherapy on Thursday.

The chemotherapy regimen is called BEAM. It’s 4 different types of chemotherapy given over 6 days. On the 7th day I rest (how biblical!) and then Thursday April 7th is known as day 0, my 2nd birthday!!! That’s when I get my new stem cells infused.

Every day after day 0 is referred to in positive numbers. (And hopefully the beginning of positive outcomes!) On days +1 and +2 I get ATG which is an antibody that targets human T cells, which are the immune cells that are the most responsible for the demyelination that occurs in MS.
Also I learned that I’ll be on antiviral and antifungal prophylaxis throughout the entire procedure. They don’t used antibacterials in the beginning but the minute I feel unwell or get a fever they will add them.

My neckis sore but tolerable.

 

Sent from my iPhone

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4 thoughts on “Hickman line

  1. Best of luck Andrea. You are a PPMS pioneer, getting BEAM myeloablative. I am cheering for you and will be following your posts.

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  2. Hi Andrea, I am so exited for you. I look forward to reading your blog daily. My name is Susan Morabito Rusinko. I’m Terry Morabito’s sister. (I have RRMS) Carrie filled me in. I’ve been reading up on this. I’ve heard very positive results were realized after the treatment. I know initial treatment is difficult, but outcome will be worth it. Best of luck. I will keep you in my thoughts and prayers. All the best. Take Care of yourself. I’m cheering you on.

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    1. Hi Susan, There are many Facebook groups for HSCT you can request to join. HSCT Isreal, Russia, Mexico.Singapore, Hemapoietic stem cell transplant, I have learned so much from the file sections. Also Dr. Burt in Chicago is treating RRMS with HSCT.You can also YouTube HSCT and watch videos of people’s success Just know there are scammers out there preying on people with chronic diseases……no chemo no cure.

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