All good things in all good times

June 13th to June 17th

Alexx here. Quick update today.

Mom is looking better each and every day. Her strength is improving and she is making great progress with PT. She is slowly regaining her confidence and independence.  And accumulating a beautiful wardrobe of nightgowns and head scarves in the process!

Medical Stuff:

EBV remains undectable.

CMV came down to 7,000. It had been 2.3 million! She will likely get a few more days or weeks of the IV Foscarnet and then switch to an oral medication.

Her IL2, the specific HLH marker, is 715.  Down from 8,000!

Her bone marrow is showing signs of recovery. The white blood cell count is rising every day, 2.7 today, and she is requiring less transfusions.

They are slowly going to start peeling back the antibiotics and IV medications.

Every day we are overwhelmed with feelings of gratitude and hope.  This journey has strengthened our love for each other exponentially and we are so looking forward to the next step.  Shabbat Shalom.  Love and Light!!!

Photo Time!

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